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28 gru 2021 · By joining NMO-related support groups, we have built lifelong friendships with other patients and caregivers whom we now call family. Bella knows that she can reach out to others with NMO for support when she needs it.
The Sumaira Foundation is a 501 (c) (3) organization dedicated to generating global awareness of NMOSD* and MOGAD*, building communities of support for patients and their caregivers, supporting research and patient advocacy.
24 paź 2020 · This support group includes people with TM, Longitudinally Extensive Transverse Myelitis (LETM), and Acute Disseminated Encephalomyelitis (ADEM). Those with conditions such as Neuro Myelitis Optica (NMO), Lupus, Rheumatoid Arthritis, and other conditions are also welcome.
Support Groups. Rare to the Rescue™. No matter where you are on your NMO journey or how NMO affects your life, support groups aim to offer a sense of comfort and community. You're invited to reach out to one of the many advocate-led support groups.
If you or a family member is diagnosed with NMO, it is important to build a support system that includes family, friends, professionals, and support groups. A person with major disabilities may need the support of neurologists who specialize in NMO, occupational therapists, physical therapists, and social services professionals.
Local NMO support groups, the National Organization for Rare Disorders, and other nonprofits are good places to start when you need financial support. Depending on which drugs you take, you may be able to find help paying for them.
Neuromyelitis Optica Spectrum Disorder (NMOSD) is a rare relapsing autoimmune disorder that preferentially causes inflammation in the optic nerve and spinal cord.
