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Hayley Leanne Okines (3 December 1997 – 2 April 2015) was an English author and activist who was a sufferer of the extremely rare aging disease progeria. [3] [4] She was known for spreading awareness of the condition.
15 kwi 2015 · Hayley, of Bexhill, was told she would not live beyond the age of 13 but underwent pioneering drug treatment. Her funeral was held at All Saints Church in Sidley.
9 kwi 2015 · Hayley Okines, who has died aged 17, had progeria and endeavoured to enjoy her limited time – and raise awareness of the disorder.
treatments to alleviate symptoms and potentially slow down the aging process. Hayley Okines: A Life Lived to the Fullest: Hayley's story transcends the medical narrative. Diagnosed with HGPS at just two years old, she defied expectations, living a vibrant and full life despite the physical challenges.
3 kwi 2015 · Hayley Okines, from Bexhill in East Sussex, became known as the "100-year-old teenager" and won thousands of hearts as she and her family raised funds for her medical treatment and to raise ...
4 kwi 2015 · The U.S.-based Progeria Research Foundation said Hayley Okines, from East Sussex in England, died Thursday at her home. No other details were provided. The group’s executive director Audrey...
3 kwi 2015 · Hayley Okines was born with progeria, a rare condition that caused her body to age eight times faster than normal.