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Hayley Leanne Okines (3 December 1997 – 2 April 2015) was an English author and activist who was a sufferer of the extremely rare aging disease progeria. [3] [4] She was known for spreading awareness of the condition.
9 kwi 2015 · Hayley Okines, who has died aged 17, had progeria and endeavoured to enjoy her limited time – and raise awareness of the disorder.
3 kwi 2015 · Hayley Okines, the teenager with a body similar to that of a 100-year-old due to rare genetic condition, has died aged 17.
3 kwi 2015 · Hayley Okines, of Bexhill, England, managed to survive four years longer than doctors predicted after she was diagnosed as an infant with the genetic disorder Hutchinson-Gilford syndrome, more commonly known as progeria.
4 kwi 2015 · Hayley – who BBC News say had the “body of a 104-year-old” – was being treated in the hospital for pneumonia, but she returned home shortly before she died.
15 kwi 2015 · Hayley, of Bexhill, was told she would not live beyond the age of 13 but underwent pioneering drug treatment. Her funeral was held at All Saints Church in Sidley.
27 lut 2008 · Hayley Okines is 8 years old but her body has aged to that of a woman in her 70's due to the rare ageing disease Hutchinson Gilford Progeria. This documentary follows her and her family as they are faced with a potential treatment for the condition.
