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FindingsThe overall incidence and prevalence of inherited EB based on 16 years of data collection across the United States were 19.57 and 11.07 per 1 million live births and per 1 million population, respectively. Similar data are reported for each major EB subtype.
1 lis 2016 · Pertinent to this report, estimates were made of the incidence and prevalence during 2 time frames. Results: During the first 5 years of funding of the registry, the overall incidence and prevalence of inherited EB were 19.60 and 8.22 per 1 million live births, respectively.
3 sty 2020 · The National Epidermolysis Bullosa Registry estimated that the overall prevalence of epidermolysis bullosa in the United States is 11.1 per one million live births, with an incidence of 1 in every 51,000 live births .
4 lut 2020 · Epidemiological data indicate that JEB is less common than simplex or dystrophic types of EB. Figures from the USA suggested a total incidence of just over two per million live births; however, prevalence rates lower than this likely reflect the short life expectancy of the severe form. 12, 15
8 lip 2020 · One of the main research groups on EB, which included a sample of 3,271 patients with EB in the United States, estimated the incidence (between the years 1986‒2002) and the prevalence (year 2002) of the disease in the country to be 19.57 and 11.07 per 1,000,000 individuals, respectively.
24 wrz 2020 · In the NEBR, EB simplex had a prevalence and incidence of 6.00 per one million population and 7.87 per one million live births, respectively; junctional EB had a prevalence and incidence of...
Clinical Overview. Valuable clues as to EB type are often gained by experienced clinicians who become familiar with the various phenotypic expressions seen in EB, as well as the anatomic sites affected and extent and severity of disease.
