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People who have ALS can support research by contributing to the ALS database. This research could lead to determining how disease patterns change over time and could identify potential common risk factors. Free continuing education credits are available for healthcare professionals.
National ALS Registry is a platform for the ALS community connecting patients, clinicians, and researchers.
To verify authorizations under the Psychology Interjurisdictional Compact, access. If you would like to search for a complete list of licensed providers, please visit our data portal. Complete one or more search fields. Enter License Prefix and License Number with no spaces, leading zeros or colons. Example: ME99999 or ME069999.
View an interactive map developed by the ALS Geospatial Hub to locate the nearest ALS clinics in your area. 1 Prevalence: is the proportion of people with a particular disease during a given time period. Calendar year 2018 is the most current prevalence data available at this time.
Information and assistance for people recently diagnosed with ALS or recently referred to the ALS Association. Equipment/Assistive Technology. Consultation on the use of equipment, home adaptations and computer-enhanced communication devices, as well as an equipment loan pool.
The Registry is used to collect and analyze data about people living with ALS in the U.S. to: Estimate how many new cases of ALS are diagnosed each year. Estimate how many people are living with ALS. Better understand who gets ALS. Better understand what factors affect the disease. Enhance research to find the cause(s) of ALS. How to Take Part 1.
The National ALS Registry collects, manages and analyzes data about people with ALS, which leads to better research—and a better chance at fighting it.
